Caregivers often have to make difficult decisions and take care of a variety of logistical arrangements, while preparing for and grieving a significant loss.
There are several organizations that provide excellent resources for end-of-life caregivers around topics such as:
- How to talk with a loved one about end-of-life issues
- Estate planning
- Living wills and powers of attorney (i.e., advance directives)
- Palliative care
- Spiritual and emotional support for the dying and their loved ones
- Grief and loss
Caring Connections, a program of the National Hospice and Palliative Care Organization, provides practical and thoughtful resources for both caregivers and the sick and dying. The site links to each state's advance directive forms, making it simple to find and use these important documents.
The Hospice Foundation of America offers frank, trustworthy information about what to expect when you are caring for someone who is dying. They also provide information about advance care planning, as well as links to hospice locations and grief support groups.
National Public Radio's Program on the End of Life includes transcripts of a wide variety of radio programs related to death, dying and end-of-life care. It also contains an excellent annotated list of organizations that provide support and services to people with life-threatening illnesses and their families.
The Duke Institute on Care at the End of Life provides resources about end-of-life issues particular to certain cultural, religious and ethnic groups, including African Americans, Hispanics, Jews and Christians.